Articles & Studies

Champions for 30 Million Reasons on #RareDiseaseDay

There are 30 million people living with a rare disease in Europe today. Their testimonials reveal the fight they still face for access to a diagnosis, health care, treatment, awareness and equality. Rare diseases are often life-changing, and many start in childhood. These conditions can mean everyday activities like exercising or travelling become impossible. On this Rare Disease Day, the health of people living with a rare disease – and the impact on their carers and families – is in the spotlight worldwide. They are one of 30 million reasons why Europe needs policymakers to develop a European Rare Disease Action Plan. Read more in the analysis written by FIPRA, which continues its efforts to champion this cause as part of the vibrant rare disease community that inspires us daily with their spirit and courage.